Epilepsy News

What is Refractory Epilepsy? Can Anything Stop Her Seizures? [Video]

What is Refractory Epilepsy? Can Anything Stop Her Seizures?

In this video, we answer the question, “What is refractory epilepsy?” Raelynn has tried many, many medications in the attempt to reduce or eliminate her seizures. Unfortunately, her doctors have come to the conclusion that she has refractory epilepsy (this is sometimes known as irretractable epilepsy).

We also discuss various seizure treatments, including cbd and her vns.


00:00 Intro
00:24 Talking about Refractory Epilepsy
00:54 Discussing Medications
02:16 Train Intermission
02:37 Frequency of Seizures
03:12 Other Treatment Options
04:09 Drug Resistance
05:13 CBD/THC
08:08 VNS
09:33 Wrapping Up
11:53 Heading to Bed!

A few playlists you may find helpful:
⏩ Seizures:
⏩ Assistive Equipment:
⏩ Medical Procedures:
⏩ Living Life with Disabilities:


Raelynn has epileptic encephalopathy, global developmental delay, cerebral palsy, cortical vision impairment, and I could go on and on. In fact, I’ll go on a little more. Raelynn is quadriplegic. She has a gastro-jejunal (GJ) tube through which she “eats” all of her food. She has a vagus nerve stimulator (vns), and is currently getting intravenous immunoglobulin (ivig) treatments to hopefully help with her seizures. She regularly wears a shaker vest, uses a nebulizer, and a cough assist machine to help her breath better, especially when she seems extra susceptible to aspirating on her oral secretions.

Raelynn’s been to the doctor more times than the rest of our family combined!

In this whole situation, if we were looking for hope in our circumstances, we honestly wouldn’t find much. Raelynn will probably always be in a wheelchair. She’ll probably always be fed via a food pump. She’ll probably never talk. And she has virtually no chance of getting better.

I can’t tell you how many times people have told me, “God can heal her.” I’ve actually come to find it a little funny when people say that (and I’m a pastor!). I know that God CAN heal her, and I know that God will heal her in eternity, but the point of life is not that we wouldn’t have difficult circumstances.

God is using Raelynn exactly as she is right now. I see how much I’m a better person because of Raelynn. I see the ways God has changed my family, the things He’s taught us, the people He’s put us in connection with, all because of Raelynn’s problems. When I see how much God uses her disabilities, I see that God takes the bad things, the hard things, the hopeless circumstances of our lives and brings beauty, goodness, and hope from them all.

That’s what this channel’s about.

We post videos of Raelynn’s life, seizures, and other disabilities to this channel three days a week (Monday, Wednesday, Friday).

If this sounds like something you could benefit from, please consider subscribing! Your subscription will help us keep making videos of Raelynn’s life and assistive technologies! ❤️

#epilepsy #seizuretreatments #refractoryepilepsy

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Mozart Sonatas Can Help Treat Epilepsy: A New Study from Dartmouth [Video]

Many and bold are the claims made for the power of classical music: not just that it can enrich your aesthetic sensibility, but that it can do everything from deter juvenile delinquency to boost infant intelligence. Making claims for the latter are CDs with titles like Baby Mozart: Open Culture,

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From your vision to your hearing, even your memory, Lee Health family medicine Dr. Ravi Ramaswami says annual physicals are a good opportunity for health experts to do an overall check of your health. “The term “physical” is a misnomer, it should actually be called preventive examination and the reason it’s important is that it’s not whatever is obtained in a physical exam on that particular day, it’s actually to prevent problems in the coming months or years.”Doctors say regardless of your age, it’s important to have a physical every year. “It goes all the way from children to adults and seniors. Each category of people has different requirements of things that we look for. In children, we are looking at possible obesity, childhood obesity, problems concerning that, developmental milestones, for instance. As one grows older, we are looking at tobacco use, their general lifestyle,” he said.But it’s not only your physical health doctors are concerned with. “Stress is one of the most underrated causes of problems, medical problems. We do depression screenings. We really look at their overall health,” said Dr. Ramaswami.Doctors may also order lab tests to check your blood sugar, kidney function, liver function, and cholesterol. “Being able to detect things that would have a bearing on somebody’s health in the future is what preventive care is all about,” he said.Making it important to do regular self-exams as well as maintain your annual physicals. View More Health Matters video segments at Health in Fort Myers, FL is the largest network of health care facilities in Southwest Florida and is highly respected for its expertise, innovation and quality of care. For more than 100 years, we’ve been providing our community with personalized preventative health services and primary care to highly specialized care services and robotic assisted surgeries. Lee Health - Caring People. Inspiring Care.Visit

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